Analyzing the Parkinson's disease clinical trial pipeline to facilitate patient collaboration in research.

PDTrialTracker.info

Motor, Non-motor and Genetic Determinants of Progression in Parkinson's Disease: A Mexican Multicenter Cohort Study (ReMePARK)

(patient registry)
ClinicalTrials.gov ID: NCT01865877
Estimated Enrollment: 440
Study Start Date: August 2012
Estimated Study Completion Date: August 2016

Shown below are some of the active and recent web-based PD studies and PD registry projects.

Parkinson's Disease Registry (Taiwan)
ClinicalTrials.gov ID: NCT02051205
Estimated Enrollment: 200
Study Start Date: December 2012
Estimated Study Completion Date: December 2014
Result summary: TBD

Brain Health Registry (UCSF)
www.brainhealthregistry.org/
ClinicalTrials.gov ID: NCT02402426
Estimated Enrollment: 50,000
Study Start Date: September 2013
Estimated Study Completion Date: September 2023

Smartphone-PD: Mobile Technology to Track and Quantify Parkinson Disease in Real-Time
Study site: redcap.urmc.rochester.edu/redcap/surveys/?s=9kEaLDXeDb  (not listed on ClinicalTrials.gov)
Six-month study using Android smartphones.
Estimated Enrollment: 2000
Preliminary results: www.maxlittle.net/publications/harris_smartphonepd_mds-2015_preprint.pdf

Providing Specialty Care to Individuals With Parkinsonism Directly in Their Homes Via Web-based Video Conferencing (TELEMED-PD)
ClinicalTrial.gov ID:  NCT01476306
Estimated Enrollment: 20. Study Start Date: November 2011

Estimated Study Completion Date: August 2012
Result summary: TBD

Web-based Genetic Research on Parkinson's Disease
www.23andme.com/pd/
ClinicalTrials.gov ID: NCT01351467
Estimated Enrollment: 10,000. Study Start Date: April 2009

Estimated Study Completion Date: January 2020.
Involves mailing in a DNA sample & completing online surveys.

Web-based studies and PD registries


Web-based studies can be a convenient way to participate in research since they can usually be done from the comfort of home.  They may involve questionnaires, surveys, and the use of Smartphones or other mobile devices.  

Real-PD Trial: Development of Clinical Prognostic Models for Parkinson's Disease
ClinicalTrial.gov ID:  NCT02474329
Estimated Enrollment: 1000. Study Start Date: July 2015.

Estimated Study Completion Date: April 2017

Parkinson's Families Project (PFP)

(patient registry)
ClinicalTrials.gov ID: NCT02760108
Estimated Enrollment: 2000
Study Start Date: April 2015
Estimated Study Completion Date: January 2027